We look forward to your participation in the Powering the PHR Workshop.
For the Breakout Sessions in the afternoon, we suggest the following pairings:
SJRI and National Health Stack Teams will be split across the three teams in each session.
Facilitator: Devesh Varma
National Cancer Grid
ACCESS Health (observer)
Facilitator: Dr. Ravi
(Special session: Planning a city-wide PHR)
National Health Stack
OHUM Healthcare Solutions
Facilitator: Udai Kumar
Facilitator: Dr. Hegde
(Special session: Setting a Research Agenda)
National Cancer Grid
Facilitator: Dr. Bhushan
BREAKOUT SESSION ASSIGNMENTS
During each of the two breakout sessions, teams are encouraged to use one of the three use-cases listed below, or their own use-case, and use the slide decks provided during the session, to map technical and regulatory needs, and identify incentives, to move data across their systems, using the NHS architecture.
1. A pregnant migrant worker whose cervical cancer screen was positive.
2. A shop owner that travels frequently between a metropolis and a 2nd tier town, who has hypertension and tuberculosis.
For each of these cases (or another of your choice), please identify what data points (the fewer the better) you think MUST be portable? Porting which data points will have the highest impact?
Focus on a minimal viable product: What are your technological needs to get there? What regulations do you need in place at your institution? What laws need to be changed or strengthened to protect patients, and yet stimulate innovation? Are additional incentives required?
Can you propose a real-world test case in which your institutions are willing to prototype this solution using the NHS architecture?
For Breakout Sessions 1,2,4 and 5, we propose the following discussion format:
- Pick your use-case
- Identify which data points need to be portable ? Why? Which will have the greatest impact?
- Look at the slide-deck we have provided
- What are the technical pieces that are already lined up? Which ones do you need to build out? What do you need in order to do this?
- What institutional or state laws will support this endeavour? Identify gaps in regulation that need to be addressed.
- Does this enterprise need external catalysts or incentives to seed the system?
Breakout Session 3:
This team will examine the feasibility of a city-wide PHR in a small to medium sized city to allow portability of a “minimum data set” across a range of stakeholders (chemists, diagnostics, clinics and hospitals). Inputs will be provided by participating technical and legal experts.
Breakout Session 6:
AI needs big data. Will India’s privacy laws allow access to big data? This team will address the challenges of accessing data for shared research and propose steps to test proposed regulatory frameworks. How can adequacy of current or proposed laws be rapidly tested? What gaps need to addressed – to allow innovation without compromising privacy.
4:00pm Proposing MVPs (Facilitator: Dr. Tony Raj)
Mapping Implementation Needs
Teams will regroup to identify MVPs that generated interest across groups, and plot the technical, policy, and financial catalysts that will help develop the product. This is not meant to be a theoretical exercise, but is aimed at gauging commitment or interest in collaboration.